Bone marrow benefit planned for Scarborough child
SCARBOROUGH — Three-year-old River Louten likes red grapes, bananas on his Rice Krispies, Thomas the Tank Engine and "The Cat in the Hat."
Exuberant and engaging, River is also fighting aplastic anemia, a disease caused by a failure of bone marrow that results in a lack of blood cells and platelets.
For about two months, River has had his blood screened once or twice a week and transfusions of platelets. This week, he underwent immunosuppression treatments, which shut down his immune system to try and restart marrow growth.
Through it all, his mother Tamothy Louten said, "River's spirit is truly unchanged."
To help cover the costs of a bone marrow transplant in Boston and associated expenses for a his mother to stay there while River is hospitalized, a fundraiser will be held from 7-11 p.m. Nov. 16 at the Portland Club, 156 State St., Portland. The benefit is open to the public, with a suggested donation of $10 to $20.
"This will be a celebration of life and hope," Louten said.
The Loutens have lived on Pine Point Road for about a year, after moving from Harpswell. Louten works part-time as a pediatric nurse. Her husband, Danny, is a graphic designer.
Friends and artists from Harpswell, Augusta and other towns have donated their art and time to a silent auction to raise money for River's care and expenses. The River Louten Benefit Gala will also feature food and live music.
There will also be marrow screenings for possible donors by Paul Grenier of the National Marrow Donor Program. The screening requires a swab of cheek cells and places a person on the national donor registry.
The best possible donor match for River will rank 10 of 10 on a scale measuring human leukocyte antigen, or HLA. Even if a perfect match is not found at the Nov. 16 screenings, marrow matches for other patients of diseases, including leukemia, may be found.
Despite low red blood cells counts that can inhibit oxygen flow, and low platelet counts that help blot clot, River enjoys outdoor play and likes to walk on the beach or at Scarborough Marsh, his mother said.
"We can do things within reason, we play a lot of T-ball on the grass," she said.
"I like to do jumping jacks," River added.
Because of his reduced ability to fight infections and illnesses, River no longer attends day care. Louten said the family is cautious about things like birthday parties, because of the possibility of contagions. When she and her husband both have to work, her mother or one of River's former day-care instructors help care for him.
The aplastic anemia was discovered after River had an allergic reaction to fish one Friday night several months ago. He is also allergic to nuts, eggs, poultry and sunflower and sesames seeds.
The reaction to fish caused bruising and pinprick-sized spots on his torso from burst blood vessels, called petechiae. On the Monday after his reaction, Louten said his pediatrician took a blood sample. When the results were known the next day, she was told to take him to an emergency room, because his platelet count was dangerously low.
By that Wednesday, he was seeing doctors at the Maine Children's Cancer Program in Scarborough. It was quickly determined he did not have leukemia, but his bone marrow was failing. Louten said a marrow transplant would have promising results.
"His youth means chances of recovery are very strong," she said.
A transplant also means one to three months of hospitalization in Boston, with Louten staying close by and Danny Louten visiting when he can.
The food allergies have ensured the whole family eats a better diet without processed foods, Louten said, but it will be a relief when that is the biggest problem they confront with River's health.
"We will gladly go back to a life with its smaller challenges," she said.
News about River and more information about the benefit auction and gala can be found at the River Louten Fund page on Facebook.